When Life Gets Hectic - Don't forget to take a breath

Life has a habit of rushing past at speed — and if you're raising a neurodiverse family, you'll know that this feeling is amplified tenfold. The mental load is immense: school runs, therapies, sensory regulations, meetings, meals, and the relentless background hum of making sure everyone is okay. For so many of us, existing in fight-or-flight mode isn't a phase — it becomes the default setting.

But today, something shifted. 

"I realised I had been running on empty for so long that I'd forgotten what it felt like to simply be present — not managing, not planning, not bracing. Just there." 

The day began with a genuinely welcome surprise: an email confirming my place on a five-week neuroscience course run by the Mary Frances Trust — an organisation that, if I'm being completely honest, has been my quiet lifeline over the last three years. Their support has been the kind that doesn't ask anything of you in return; it simply holds space for you to breathe and begin to understand yourself a little better. This course is just another example of the extraordinary work they do for families like mine. 

💡 Insight for Neurodiverse Families: Why Neuroscience Matters to Us

Understanding how our brains work — particularly around threat response, sensory processing and emotional regulation — can be genuinely transformative. When we understand why our nervous system behaves the way it does, we stop fighting ourselves and start working with ourselves. If you haven't explored neuroscience-based support yet, it may be one of the most empowering things you can do for yourself and your family.

The course reminded me of a profound realisation I had back in January: that the small things — the seemingly insignificant, unhurried moments — are often the very things that sustain us most. 

My sister had sat me down just last week and said what I already knew but hadn't yet allowed myself to act on: "You need to slow down." She was right. I just needed to arrive at that truth myself.

The Evening That Changed Everything

The evening that followed the course was, on paper, entirely ordinary. The usual back-to-back pickups, checking in with a dysregulated child, getting another to dance on time, glancing at emails to ensure clients were taken care of. The familiar rush.

But then — I made a choice. Instead of defaulting to autopilot, I put my phone in my bag, took a slow breath, and took the children to the park for the first time in weeks. What followed felt, in the simplest and most beautiful sense, like relief. We played. We weren't rushing toward bedtime or the next task. I wasn't half-present, half-elsewhere. I was just there — and they felt it. The ease between us was immediate and unmistakable.

"Being fully present with our children isn't a luxury. For neurodiverse kids who are exquisitely attuned to our emotional state, it might be the most regulating thing we can offer them."

When we finally got home, later than planned and entirely unbothered by it, we did something we hadn't done in a while: we browsed a cookbook together. We found a simple, healthy recipe — one that even my notoriously selective eater was willing to try. And they didn't just try it. They asked for more. We sat together and talked about food, about health, about what feels good in our bodies. It was one of those conversations you don't plan for but will remember for a very long time.

We ended the evening making overnight muesli with berries and banana for the morning — and there was genuine excitement about waking up to something nourishing. By 9:30pm, the children were settled, happy, and already looking forward to tomorrow.

Advice for Families Like Ours: Small Shifts That Can Make a Real Difference

  1. Name the fight-or-flight cycle.  Recognising that you're in a stress response — not failing — changes everything. You can't regulate your child from a dysregulated state. Your nervous system matters too.
  2. Give yourself permission to pause. The park, the walk, the ten minutes outside — these aren't indulgences. For neurodiverse families especially, moments of unstructured togetherness can have a profound co-regulating effect.
  3. Let bedtime be flexible sometimes. A 9:30pm bedtime with laughter and connection will often serve your child's nervous system far better than a rigid 7:30pm one marked by tension and rushing.
  4. Involve your child in food — not force. Selective eating is incredibly common in neurodiverse children. Low-pressure exploration (a cookbook, a choice, a conversation) tends to open more doors than structured mealtimes ever will.
  5. Seek out specialist support early. Organisations like the Mary Frances Trust exist precisely for moments when the weight becomes too much to carry alone. There is no strength in struggling in silence.
  6. Celebrate micro-wins. A new food tried. A calm bedtime. A moment of genuine laughter. These are not small things — they are the whole thing.

The to-do list is still there. It will be there tomorrow and the day after. But tonight, for the first time in a long while, I chose not to serve it. I chose my children, I chose presence, and I chose myself. And every single thing that followed — the dinner, the talking, the muesli, the stories — flowed naturally from that one quiet decision. If you're a parent in the thick of it right now, running on adrenaline and love in equal measure — this is your gentle reminder. You don't need to do everything perfectly. 

You just need to show up, as you are, for the moments that matter most.

If you need help or support, get in touch with the Mary Frances Trust - they have inspired and supported our family throughout our journey and offer a wide range of activities and courses to enhance your mental wellbeing.